Thank you for attending the girls night in. Email from 24 Oct

Hi Girls
Thank you all for attending our Girls Night In and/or making a donation
to our fundraising efforts for Cancer Council and breast cancer.

It was such a wonderful night and so good to see you all.

We raised almost $2000! Jen is hoping Macquarie will match this with
their Matching Gifts Program.

We are very grateful to you all and lucky to have such good friends.

Best Wishes

Cathy, Jen and Maryanne

GIRLS NIGHT IN for PINK RIBBON DAY

Hello Ladies

We are hosting a GIRLS NIGHT IN on Monday 22nd October for Pink Ribbon Day.

We would love it if you could join us for a drink and a canape or two. It will be a great opportunity to catch up with everyone after a very eventful year for Jen, and to say thank you for your prayers and well wishes.

Details are:

Jen's Angels Girls' Night In
Date: Monday 22 October 2012
Time: 6pm - 9pm
Where: Apt 3/ 501 Bronte Rd, Bronte
RSVP:  Please let me know if you are able to make it by 15 October: ckovacs@me.com or text to 0411269545

We will be collecting  donations at the door for the Cancer Council. Cancer Council is a community funded, community focused cancer charity dedicated to the defeat of cancer and is the ONLY cancer charity in Australia that helps those affected by breast cancer throughout their entire breast cancer journey.

If you can't make it on 22nd, but would still like to donate below is the link to the fundraising page.

See you on the 22nd.

Jen and Cathy

http://nsw.cancercouncilfundraising.org.au/jensangelsgirlsnightin

Jen's Back!...and an Invitation

Hi Angels,

Well I think we called the recovery slightly early last time, but now I am happy to tell you that JEN K. IS BACK!

My last post was 2 months ago, and at the time Jen had completed radiotherapy and was expecting it to be smooth sailing from there. Unfortunately, the cumulative effects of all the treatment had a delayed reaction, and for a while there Jen was feeling pretty miserable.

Finally, those feelings have passed, and Jen is feeling well enough to face the world again.

After a long 11 months of treatment, honestly harder than she had envisioned, Jen is back to her old self. She is feeling healthy, less tired, more sociable and more capable of dealing with the hub bub of everyday life.

Last week, Jen and Will had a lovely family holiday with the girls in Fiji. Where better to shake off the gloomies? After a week with the sun on your back, the salt water in your hair, and the peace, love and kindness of the Fijians, everything seems rosy, and no mountain too big to climb.

Jen's now feeling ready to go back to work. The wonderfully patient team at Macquarie are welcoming her back in a couple of weeks. She'll start off slowly, and build up to her full capacity by the end of the year. This is a huge step in the right direction, putting behind her the trials of the last year. It is the last piece in the 'back to normal' puzzle she's been focusing on achieving.

22 October is Pink Ribbon Day, when we get together to raise awareness and funds for women's cancers. Jen would love it if we got the girls together for a Girls Night In. Ladies, please SAVE THE DATE. When we work out the details, we'll be in touch again.

I hope those of you in Sydney are out enjoying the spectacular day.

Take care all

Cathy (and Jen)

The sky is clearing!

Hello Angels,

As the heavens continue to send forth the rain, Jen's clouds are clearing, and she can see the light on the horizon in terms of her treatment. 

I won't recap the stats, but as you all know, it's been 9 months of hell for Jen and Will. Fortunately this is the last week of her radiotherapy, and Jen is really looking forward to getting off the medical treadmill.

As you'd expect, the end of treatment brings mixed emotions. She's relieved to have finished the treatment, so now..... we have to wait patiently to see the fabulous results of all those horrible drugs.

Over the next few months Jen is going to focus on her wellbeing, getting fit, and doing what makes her happy. The good news for all of us is that what makes Jen happy is catching up with friends and family. So I expect you'll all be seeing much more of Jen and Will from now on.

Fortuitously, the end of treatment coincided with Jen and Will's 4th wedding anniversary. Hard to believe it was only 4 yrs ago that we celebrated that great day. Jen and Will have definitely had plenty on in the last few years, and so much to celebrate - especially their strong friendship, and their beautiful girls. They celebrated at Momofuku restaurant at The Star. Jen said it was very special, although with 15 courses to get through, no wonder she was "stuffed" the next day.

For those of you who haven't seen Jen for a while and aren't sure of how she's feeling physically and emotionally, I can tell you that she has absolutely turned the corner. Her hair has grown back beautifully although still on the short side, she doesn't look like a cancer patient now - just a local Lilyfield 'chick'! Without the chemo drugs in the system she is feeling so much better.  Also she has built up her emotional resilience and is feeling more positive than ever that she has beaten this beastly illness, and it is all behind her. 

I know you all feel the same way and wish her well.

Thanks again for all your love and support. It has definitely helped, and we are so grateful for every little thing, and every thought and prayer you send Jen's way.

Love to all

Cathy

News from the Front

Hi Angels,

Thanks for checking in on Jen's Road to Recovery. It isn't as entertaining as the compelling Voice/Masterchef bonanza we are being treated to on Aussie TV at the moment, but I'll do my best to keep your attention for the next few minutes.....

A huge effort from Jen this week, as she commenced the next stage of her treatment - radiotherapy.

She had hoped to start sooner than this, however with a slower recovery from chemo than expected, root canal on a tooth ( yes, can you believe it!), and  minor preventative surgery,  all since chemo finished, she delayed the treatment until this week.

So with the chemo and surgery recovery well advanced, and a couple of days R & R in Port Douglas for Jen and Will, Jen was finally ready to hit RPA Hospital for a daily dose of radiotherapy to the effected area.

Jen will visit RPA for this treatment daily for the next 6 weeks. After which, god willing, her medical treatment will be complete, and she can focus on her general 'fit for life' health and wellbeing, like the rest of us.

The ever strong and constant Will is in Europe and China on business for a couple of weeks, so Jen and the girls came to stay with Rob, I and the kids on the weekend. We always love having them with us, and this weekend was no different.

We enjoyed a great Mothers Day with gourmet treats courtesy of Maryanne and  plenty of home made Mothers Day cards from the children. Jen was also pleased to know that some of her dear friends were out running the Mothers Day Classic in the City - a Cancer awareness event. Maybe next year we can all do it together???

Which brings me to the continuing amazing support Jen is receiving from all of you. A number of you have helped Jen over the last couple of weeks while Will has been away, and Jen needed help lifting the girls. I was at Jen's last Wednesday night and the house was full of helpers. Jen is so grateful for this assistance.  She's also had a few of you sleep over and has commented on how nice it is to bond with her girlfriends in this way again.

If there is a good side to this story, it is that Jen is far more comfortable these days asking for help when she needs it. I know she found it hard to accept that she wasn't as strong and capable as she has always been, but with friends and family like all of you, her journey is made so much more bearable.

For those of you supporting from afar, your words of support and encouragement are also highly valued, and much appreciated.

From all of us, to all of you...keep believing! Jen is a star and she will be back in full swing very soon.

Love to all

Cathy

Last Week's email..for the blog followers

Hi Everyone

We hope you had a lovely Easter, and for those in the midst of school holidays, you are managing to keep the kids entertained!

The great news from Jen is that she has finished her chemo treatment. Her last dose was last Tuesday. She is so happy/relieved/stunned to be finished, and is really looking forward to feeling fit and healthy again.

Before she starts radiotherapy in a couple of weeks, she is taking a few mini-vacations - one with kids, one just her and Will - getting some necessary dental work (after chemo that's a walk in the park) and having minor surgery as a preventative treatment. Radiotherapy is six weeks of daily treatment. This will happen at RPA as it is closer to home. Jen has a great radiotherapist and she feels in good hands for the next and hopefully final stage of her treatment.

Jen has been discussing her return to work plan with Dr Friedlander and the wonderful team at Macquarie, and she is planning to ease back in over the 2nd half of the year, so as to ensure she can maintain a healthy balance.

If you've spoken to Jen recently you've probably noted a more 'back to normal' Jen. She is truly amazing and those of us very close are very relieved that she is feeling much better, both physically and mentally.

I am sure she would love to hear from you, so please drop her a note when you get a moment!

As I said on the blog last week - Easter is a time of great possibility - in Jen's case - we know this to be true!

For those of you who are praying - please keep Jen in your thoughts. I remember when Mum had cancer 18 years ago, and her name was on the prayer list at St Therese Dover Heights for many years. We used to tell her to take her name off the list - she wasn't sick! But she insisted she still needed the prayers - and given she is here to tell the tale - she must have been right.

Love to all

Cathy

Big Milestone - Huge!

Hi Angels
(Apologies for the lag in news. I'm having email issues.)

Thank goodness for the blog - and those of you who can follow...because today is a huge day for Jen.

After 5 months of chemo, today was Jen's last session. She has officially finished the chemo stage of her treatment. She's feeling really good about everything, and ready to get on to the next stage - radiotherapy - with a quick stop in at the dentist for root canal in between (there is a positive side to cancer - root canal seems like a walk in the park!).

Over the next few weeks/months Jen expects to gain more energy, and get back to feeling like her good old self.

Dr is very happy with Jen's progress, and we are very proud of the way she has managed it.

Easter is a time of new birth and great possibility - may it be so for Jen and Will and all those who continue to support her journey.

Love to all

Cathy

Update on the Amazing Jen

Hi Angels,

We had a wonderful family breakfast yesterday - all the Kovacs, Stanton, Killingers, and I wanted to share with you how well Jen is managing her care, and getting on with the day to day job of managing a family etc

We bumped into a work colleague of Jen's and she commented on how great Jen looks and how fabulous it was to see her. It dawned on me, that for those of you who haven't seen Jen since she began treatment, (but have been supporting so fantastically from afar) it must be hard for you to visualise her in the current situation.

I am very lucky to be able to check in with her daily and see her all the time, so while I see the ups and downs, I take great comfort in being able to see and hear how she is really feeling.

So for those of you who miss Jen - whether it be socially or at work - I can tell you - she looks great. Her skin is shiny, her eyes are bright, her laugh is loud - and ok - she's lost her hair - but otherwise, when she is out and about and feeling good - she looks great.

When I think about why this is, I think Jen says it best - "I haven't got cancer - I HAD cancer, and now I am having treatment to make sure it doesn't come back".

Jen is desperate to be back amongst you - she'd love to be at work, and out socialising with you all. She'd love to have the energy to care for the girls, and Will, without additional help. All in good time, as I keep telling her.

In the meantime she is doing an amazing job of managing her treatment, resting, and where possible, looking after the girls, being a great wife to the continually amazing Will, and putting the finishing touches of their beautiful home.

And the good news is, she is starting to think about her 'post chemo' plans. That in itself is great progress.

You know Jen - she's got an amazing outlook on life - and this little hiccup is only making her stronger.

For those of you tracking the treatment  - there are 6 chemo treatments remaining, followed by 6 weeks of radiotherapy.

Keep up the prayers and well wishes  - she isn't out of the woods yet - but she's on her way back!

Love to all

Cathy

Postcards from "The Road"

Hi Everyone,

Happy New Year. Obviously we are aiming for health and vitality this year.

The support you are showing for Jen is wonderful. I have had a much better insight into this while she, Will and the girls have been staying with us. Her phone is constantly beeping with messages from you all, and even if she doesn't respond - trust me she is listening - it is helping her find the energy to fight the good fight.

I think I speak for Jen and all the immediate support crew when I say we have moved from the 'alarmed' stage to the 'alert' stage. Time is an amazing healer, and as Jen moves onto phase 2 of the chemo treatment - she has settled into the chemo routine  - and can almost see the light at the end of the tunnel.

Jen started her second cocktail of chemicals 3 weeks ago. This cycle will last 12 weeks. She has Taxol  weekly - with general tiredness and headaches as a side effect, then she has Carbo Platinum every 3 weeks - which brings with it nausea. Despite all her efforts  to keep a normal routine, for one week out of three the nausea is delibitating.

So during the good weeks (about half the time) Jen is in good health - eating well, spurts of energy, mental focus. She needs to have a morning and afternoon nap, but otherwise soldiers on.

I always admired Jen for her positive attitude and can do approach to life, but now I watch in awe as she and Will tackle finishing off their renovation, caring for two demanding little ones, and managing Jen's health. It is amazing how life goes on, and everyone gets on with things.

Jen and Will are very excited to be moving back to Lilyfield this weekend. The house is looking amazing. The huge effort of Maryanne, Bob the Builder, Will the labourer/painter and Jen the interior designer have payed of beautifully.

Special thanks to the chemo fairies - the crew who have been taking Jen to hospital each Tuesday. Depending on the week, this can be a few hours or half a day. It's when you get the reality check of what Jen is really dealing with, but also get the confidence boost, that all will be well in the end.

Many of you have asked 'what's next' and 'when we will know if the chemo is having the desired effect'? After this round of chemo (end March) Jenwill have radio therapy daily for 6 weeks The first real test will be her scan in September. It's tough not to be able to get an earlier read on things, however I think this is the thing with cancer and those who have had it - you get your annual scan and over time, you think and worry about it less and less - that's called recovery!

So Angels, thanks once again for all your love and prayers. At this stage everything is going well.

Love

Cathy

A MESSAGE FROM JEN

Hello everyone

Just wanted to say a quick hi. I’ve been meaning to do this for a while but haven’t found the energy… but now, as the new year takes off, I’ve passed one milestone of my chemo – and have come out the other side (yay!) - and before I head in for more treatment (boo!), it seems like the right time.

There is so much I want to say – most importantly I want to really thank everyone for the emails, texts, phone messages, facebook messages, blog messages*, gifts, cards, food, music, thoughts and prayers. Please know that I am receiving everything that is sent to me - even though I might not respond. I am so grateful to everyone for keeping in touch. It means a lot to me as I am necessarily cutoff from many of the people I’m used to seeing so much of. And to those who have been in touch from afar and also from the past – it is very special to be hearing from you all.

I am so grateful to my sister Cathy for keeping everyone up to date with my progress through her emails and the blog. She really has taken away the need for me to be sending updates, which is a huge load off. Everything I’d want to be saying she seems to capture so aptly. Sitting at the computer, emailing and texting is hard for me when I’m unwell. I really can’t speak on the phone which means communication at these times is limited. But when I come out from the haze and see messages from everyone it’s lovely. So please continue to keep in touch!

I had my last treatment for the year on 20 Dec and finally came up for air around 30 December – so Christmas and New Years were pretty quiet for us but I personally enjoyed it through Heidi’s eyes. She was very excited about Santa for the first time – we left out some food for him and the reindeers - and of course opening presents on Christmas morning was very exciting. 

Getting through the last treatment and side effects was significant as it was the last round of the AC, which is this concoction that has knocked me about a lot. It seems to affect everyone differently but for me I’m out of action for around 10 days. Cath has described what goes on for me – needless to say, it is so great to have finished this drug. The doc gave me an extra week off before I start up treatment again (tomorrow already…) which has been so nice.  

The next round of drugs (Taxol with carbo platin) will be weekly for 12 weeks but the doctor seems to think the side effects won’t be as tough. He cautioned by saying that “it’s still chemo” – but I’m really hoping I might handle the next round better. While I’m talking about the doctor, Professor Michael Friedlander, he is a wonderful doctor in whom I have a lot of faith. As Cath has mentioned, he is the breast cancer specialist at the Prince of Wales Hospital in Randwick who also looked after my mum nearly 20 years ago (and she as everyone knows is amazing and completely recovered of her illness which seems like a distant memory for all of us, even her). He is also a renowned expert in terms of his knowledge of the BRCA1 genetic mutation, which is what I now know that I have. This is a gene which has been passed down through the family and which has basically made me more susceptible to getting cancer than the average woman. At some time in the future, after I get through the chemo, I’ll write more about what this means but at the moment the doc says the most important thing is to treat the current problem, which is the cancer found in my left breast. Prof Friedlander is throwing everything at it - as he says - first chance is the best chance we have to get rid of it completely. And I have great faith in him and what he is doing. (I have to correct something from an earlier update and that is that we are using a “new” drug. The carboplatin is not a new drug and has been used on ovarian cancer (and likely other cancers) for some time. But the use in BRCA1 breast cancer is not something widely trialed and large sample data is not available. That notwithstanding, he advises the success in small samples in particular for BRCA1 has been very good – hence Prof Friedlander choosing to use this on me.)

The girls – Heidi (3 in Feb) and Amber (15 months) are mostly as happy as Larry. Amber is of course too young to understand anything, but Heidi knows that mum’s been a bit sick. Her indication of my wellness is whether or not I can carry her. When I came out of hospital after the lumpectomy I couldn’t carry either of them, which was a bit distressing especially for Heidi. She kept asking when I would be better so that I could carry her “big much” as opposed to just a little bit. Anyway, I can carry her big much now although of course at nearly 3 she walks most of the time…she just likes to know I can carry her if she needs me too! She also asks if my booby is better yet, so in small ways she knows a few things aren’t quite right. The girls find it hard to understand why they have to leave me to rest at times. It’s hard for me too hearing them outside the door sometimes banging and crying to come in. But at these times I feel so off it is less painful to hear them than to get up and be with them. I know this will pass, and I tell myself that I’m doing this for them, in addition to Will and of course for me.  And that it is ok.

We have had wonderful help from friends and family, in particular during the period after I came out of hospital, and then when I started my treatment and before we had formal home help. Will and I are really grateful to those who were able to be around for us then and who continue to be on call.  More recently, we’ve been eligible to get assistance in the way of a nanny (Chelsea) in the home due to the young age of the girls and my illness. This is working out well and the girls have warmed to Chelsea, which is the most important thing. We are hoping she will be able to stay with us for the duration of my treatment. But thanks also to friends who continue to make themselves available for us during the times when Chelsea is not around. We are very grateful.

Our house in Lilyfield- so near but yet so far. Having moved out in 2^nd week in August we’d aimed to back in by Christmas. It was always a bit ambitious, but amazingly we had very little rain when we needed the skies to be clear (someone looking down on us?) and we had a lot of good tradesmen and not too many mistakes along the way, so things tracked pretty well. We are really nearly there and were it not for the Christmas break we’d just have needed a few more weeks, but with the slowdown over Christmas (and our own slowdown..) it’s going to take a little while longer. But it’s looking great and we can’t wait to get back there. We currently estimate around Australia Day for the move home. My mum as project manager has been doing the most amazing job managing the tradies. She has been there onsite from 7am every morning cracking the whip. She has a wonderful eye for the detail and god help the tradies if they put a foot out of place. They can’t say no to her – good luck to anyone finding a 70-year old woman with as much energy to do what she is doing for us. And with such enthusiasm! We are really grateful to mum and things just would have fallen apart without her given our issues over the past few months. And thanks to dad who does endless running around for mum including bringing lunch to the building site every day. Dad also does more babysitting that any grandfather I know!

I must also say a big thank you to everyone who helped us with the move from the unit to Cath and Rob’s place  - couldn’t have done it without you guys. And of course thanks to Cath and Rob for having us stay at the moment. We're having fun!

There are so many people to thank for so many things. I can’t name everyone but please know that Will, the girls and I are really really grateful for everything. It is very humbling to be the recipient of the help and we look forward to being able to reciprocate as opportunities arise.

I do have to say special thanks to Monique who has taken so much time out of her life to be with us. She has stayed with us every Wednesday night since I came out of hospital – to, in particular, give Will a break overnight. She has also stayed with us during all of Will’s work trips and there have been a few. When she is with us, it is like there is an angel in the house. Things are left clean, washing done and of course, most importantly, we have two very happy little girls who love their Aunty Mon as much as anything. And their mummy is happy too.

As for Will, let’s just say he is keeping things “real”. He’s not wrapping me up in cotton wool, he’s not painting a rosy picture of the situation – as things have obviously been tough for all of us and he carries more than his share of the burden. But everyone who knows Will will know that that is him. 

Amid starting his new job he has had to step up his father duties and keep things moving at the house (he & Toby moved one tonne of pebbles last weekend! Thanks Toby!). At the same time he is providing great support to me, endlessly trying to pull me out of the chemo haze and back to good health so I can be with the family as much as possible. And words can’t describe what a wonderful dad he is - with the girls he is just the best. When he comes home at night, the look of excitement on their faces is priceless. There is no doubt our girls know they have a fantastic dad and I would not like to be going through this without him by my side.  

Dear friends and family, I’ll end this message now by sending you all the absolute BEST wishes for the new year. May 2012 hold many special things for everyone, in particular an abundance of happiness, good fun and most importantly excellent health.

I look forward to seeing everyone soon.

Much love to all

Jen xxxxxx

* re the blog, sorry this has been hard for many to use, I understand you need to log in to either gmail or yahoo/create a login if a first time user BEFORE you to try to leave a message…this might help? But feel free resort to other modes of communication if this is all too hard